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A prenatal ultrasound at 28 weeks shows shortened long bones (rhizomelic shortening) with a relatively large head and frontal bossing. Parents are average height.

AD; FGFR3 (fibroblast growth factor receptor 3)

  • c.1138G>A (p.Gly380Arg) in ~98%
  • Gain-of-function variant (constitutive receptor activation)
  • ~80% de novo; associated with advanced paternal age
  • Rhizomelic (proximal) limb shortening
  • Macrocephaly, frontal bossing, midface hypoplasia
  • Trident hand configuration
  • Lumbar lordosis, thoracolumbar kyphosis
  • Average adult height: ~4 feet (122-132 cm)
  • Normal intelligence

Complications:

  • Foramen magnum stenosis (apnea, sudden death in infancy)
  • Spinal stenosis (adults)
  • Recurrent otitis media
  • Obstructive sleep apnea
  • Clinical and radiographic recognition: rhizomelic short stature, characteristic facies, trident hands
  • Skeletal survey: short tubular bones, narrowing interpedicular distance caudally in lumbar spine, squared iliac wings, "champagne glass" pelvis
  • Confirmatory FGFR3 targeted testing (c.1138G>A in ~98%)
  • Frequently suspected prenatally on third-trimester ultrasound (short long bones, macrocephaly, frontal bossing)
  • Vosoritide (C-type natriuretic peptide analog) - FDA approved for growth