StudyRareStudyRare
Log in to add personal notes on this page.

A 12-year-old boy with mild proximal weakness and calf hypertrophy has an elevated CK. His maternal uncle is wheelchair-bound at age 40. Genetic testing shows an in-frame deletion in DMD.

XLR; DMD gene - in-frame variants (truncated but partially functional dystrophin)

  • Later onset (usually >5 years), milder course
  • Ambulatory into adulthood (often into 40s-50s)
  • Cardiomyopathy can be prominent/disproportionate
  • Elevated CK (but less than DMD)
  • Markedly elevated serum CK prompts molecular testing of DMD
  • DMD deletion/duplication analysis (MLPA) first; sequencing if no large rearrangement found
  • In-frame variants distinguish Becker from the out-of-frame (frameshift) variants of Duchenne (the reading-frame rule)
  • Carrier testing for at-risk female relatives (X-linked recessive); offer reproductive counseling and prenatal options
  • Cardiac surveillance with echocardiogram or cardiac MRI; cardiomyopathy can be disproportionate to skeletal weakness
  • ACE inhibitors and beta-blockers for cardiomyopathy; corticosteroids in selected patients
  • PT, orthopedic and respiratory monitoring; avoid statins where possible given myopathy overlap
  • Multidisciplinary neuromuscular care with periodic functional and pulmonary assessment

"BEcker's has a BEtter prognosis": Becker muscular dystrophy results from in-frame (non-frameshift) mutations in dystrophin, producing a truncated but partially functional protein. This leads to a milder course compared to Duchenne.