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Familial dysautonomia (hereditary sensory and autonomic neuropathy, type III)

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A child of Ashkenazi Jewish descent has poor feeding, absent tears, and episodic vomiting with hypertension. He has a smooth tongue. His sister has similar symptoms.

AR; ELP1 (formerly IKBKAP)

  • Founder variant in Ashkenazi Jewish population (1:30 carrier frequency)
  • Affects both the autonomic and the somatic (sensory) nervous systems

    Autonomic nervous system

    • Absent overflow tears (alacrima)
    • Autonomic crises (vomiting, hypertension, tachycardia)
    • Orthostatic hypotension

    Somatic nervous system

    • Insensitivity to pain
    • Decreased deep tendon reflexes
  • Other symptoms include:

    • Feeding difficulties, aspiration
    • Absent fungiform papillae on tongue
  • Clinical recognition in an individual of Ashkenazi Jewish ancestry: alacrima, absent fungiform papillae, decreased deep tendon reflexes, and absent axon-flare response to intradermal histamine
  • Confirm with targeted molecular testing of ELP1 (formerly IKBKAP); the c.2204+6T>C founder variant accounts for the large majority of alleles, with a second pathogenic variant in compound heterozygotes
  • Carrier screening is offered in the Ashkenazi Jewish population (carrier frequency ~1:30)
  • Supportive

"FDA = Familial Dysautonomia": The FDA has an Elongated, complex approval process that leaves a "TRAIL of (pharma) Tears."

"TRAIL": Tongue papillae absent, Reflexes absent, absent response to IntradermaL histamine, Tears (absence of)

"Familial DySauTONomia = Smooth TONgue": Absent fungiform papillae cause a smooth tongue.

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