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A 10-year-old obese boy with rod-cone dystrophy is noted to have postaxial polydactyly (surgically removed at birth), learning difficulties, and small genitalia. Ultrasound shows renal structural anomalies.

AR; ciliopathy (>20 BBS genes)

  • Rod-cone dystrophy (retinitis pigmentosa-like) - progressive blindness
  • Postaxial polydactyly
  • Obesity (central, childhood onset)
  • Renal anomalies (structural, chronic kidney disease)
  • Learning difficulties
  • Hypogonadism
  • Clinical diagnosis using established criteria (4 primary features, or 3 primary plus 2 secondary features)
  • Multigene panel or exome sequencing across the >20 BBS genes confirms the diagnosis
  • Baseline workup: ophthalmology (electroretinogram for rod-cone dystrophy), renal ultrasound and function, and metabolic/endocrine evaluation
  • Carrier testing of relatives and reproductive options offered once biallelic variants are identified (autosomal recessive)
  • Surveillance: serial ophthalmology, renal function and imaging, blood pressure, and metabolic monitoring for diabetes/dyslipidemia
  • Weight management (diet, activity, behavioral support); setmelanotide is an option for BBS-associated obesity and hyperphagia
  • Manage chronic kidney disease, with referral for renal replacement or transplant when needed
  • Developmental and educational support; treat hypogonadism and other endocrine deficits as indicated

BARDE BIEDL

  • Brain (ID)

  • AR (autosomal recessive)

  • Renal and GU anomalies

  • Degeneration of Eye

  • BIg (truncal obesity)

  • Extra Digit next to Little finger (postaxial polydactyly)

Bardet-Biedl syndrome mnemonic: "BARRDET-BiEDL" for Brain (ID), AR, Renal/GU, Degeneration of Eye, Big (obesity), Extra digit next to little finger
Bardet-Biedl syndrome mnemonic: "BARRDET-BiEDL" for Brain (ID), AR, Renal/GU, Degeneration of Eye, Big (obesity), Extra digit next to little finger

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